Rollentausch

Rollentausch

vakantio.de/rollentausch

Autographs will be available later!

Now I'm going to be famous. At least my hands and feet! The professor just called and asked if she could publish my pictures in a journal and also in an online conference next...

“You are very special!”

I had prepared well. Bullet points for questions, pretty much all the documents and my own notes. Then he called. I immediately liked the voice. He apologized for the 15 minute...

Control!

“Have you lost control? “You’re too thin!” my mom wasn’t the only one who told me. I have never consciously starved myself. But I forgot to eat or lost my appetite due to...

Go on…

Last year on December 18th I went swimming in the evening as I often do. This time, however, not four hours, but only 15 minutes. Then my circulation stopped and my toes hurt as...

Morphea

I love swimming. Several times a week. Up to four hours at a time. This is my personal luxury. And at the same time the beginning of my illness. Where…. Not quite! In January...

Corona?

Another line? I had just tested negative for Jakob. My own was a little pink. Tests 2 and 3 were bright white again, even though I pushed the swab all the way into my nose. Not...

Battle plan!?

“We’re making a battle plan now!” she said on the phone. “Come straight to me after your infusion.” Hematology outpatient clinic. Default. Knocking on room 7. Grim faces. Sit...

Rejected!

I was standing at the blackboard and sketching the human immune system for the trainees. My thoughts turned to my own as I looked at the IgM and wondered if it had increased....

Cryo-cold

It has snowed. And for the first time, it hurts again. My fingers, my left big toe. Every single leg muscle. The little cryos seem to be back, clogging up and scratching my...

It scratches

It scratches the upper limit. The igM is 2.23 and has therefore doubled since the last inspection. Nevertheless, the normal limit is up to 2.3 and so I'm somewhat relaxed. I...

Just say no!

What happens next? Preferably not at all! But it has to be… I had an appointment at the outpatient clinic of my supervising professor on Friday. She now wants to submit an...

Rat on the face

And suddenly I fell out of bed and a rat scurried across my face. I had heard them rustling and padding around the room the whole time. Then I was suddenly awake. The high...

Bread is not black

After the plasmapheresis we had to wait. To the pharmacy with my ImmuGlobulins. During this time I went to my ward and was introduced to the new blood pressure monitors with the...

Zack Zack Zack

Blood drawn, off to PE. When I get back, another blood sample, immunoglobulins via infusion and then possibly the Shaldon out. I let the student do this so he can practice. And...

Once students red/white please!

Here they came, the three students. All blonde, glasses, lanky, but very nice. And excited. One was bright red. I gave them a comprehensive picture of my medical history...

Break today, home on Thursday

No plasmapheresis today, the value is far too bad. I still have pain everywhere and am terribly tired. Senior physician visit: Wednesday: plasmapheresis Thursday:...

That's it….

...I thought for a second. I was really late for dialysis today. At 4:21 p.m. I was in the café with my visit when the nurse called me to say that I can go for dialysis. I did...

Darabrutinib

A new week starts. 3/5 plasmapheses are behind me. I definitely have the 4th one today, but I have to wait until the device is free. I always use a special device that heats the...

Frech am Holy Sunday!

Today is Sunday and therefore nothing is going on. Since taking vital signs this morning, no one has been with me again. But I was also traveling most of the time. First I had...

The patient has no complaints

I know I have high standards of care. And that's exactly what I try to pass on to my trainees, which is why I'm probably called strict. I can overlook a lot of things and it's...

It smells like coconut

Yes, I did it. Quietly and quietly washed my hair. Rebellious patient. There's nothing medically important tomorrow. So it could be a very slow day. But: I created a program. ...

Genmutation DNMT3A

“Sandraaaaaaaaa?” I was in the bathroom when blood was supposed to be taken. Today is PE again. I'll be picked up soon. Actually, I was supposed to do it spontaneously yesterday...

Stem cell transplant??!!

This word was mentioned before… at the beginning of the year. But then it never came back to the table. The senior doctor has just visited: “So the plasmapheresis is working...

Fried egg for breakfast

No, not because I'm in a private ward, but because my boss made me one! Blood sample has been taken. The ward doctor hasn't told me yet, but I've already seen it: my fibrinogen...

Then it twitches!

Not only does the Shaldon twitch around my neck in time with my heart, my practical instruction heart also twitches sometimes... “You’re going to be a really bad patient,” I was...

“You’re a patient now!”

…Said the lovely ward doctor. The whole diagnostic process started with her and she worked hard to get me appointments with professors everywhere. Now she is my attending doctor...

Ping Pong Pong

Hiuuuuuuuu hiuuuuuuu hiuuuuuu. That's pretty much what my neighbor's sleep apnea machine sounded like. Pong pong pong was the sound of the Shaldon, rhythmically tapping against...

My friend Shaldon

“Ms. A., it's starting!” completely taken by surprise, the nurse and the transporter both stood in the doorway. My hair was still wet from my last shower (I'm not allowed to...

Your breathing is so shallow!

“Your breathing is so shallow!” she said after I winced because she was standing right next to my bed in the middle of the night. Patients are checked on every two hours at...

The first day, arrival

So today the big adventure as a patient for two weeks begins. I don't want that, but it has to be done. The plan: 5 plasmaphereses when diagnosed with cryoglobulinemia type I...