Control!
“Have you lost control? “You’re too thin!” my mom wasn’t the only one who told me. I have never consciously starved myself. But I forgot to eat or lost my appetite due to...


Published: 19.12.2023
I had prepared well. Bullet points for questions, pretty much all the documents and my own notes.
Then he called. I immediately liked the voice. He apologized for the 15 minute delay and then took a lot of time for me. I almost stopped talking and I could almost see him smiling to himself. “You are still so young. Actually, you are something very special. That's positive at first, because you only have a little bit of cancer... There's lymphoma somewhere in your body (shit now?), but it's hard to find. You puncture your bone marrow, the tumor load is so small that you don't hit the cell. And yet she is there. You have little evil cells in your body that produce sick antibodies and they make you feel bad. I'm really sorry, you're so young. That's definitely not fair. I'm available anytime. On a short route. Simply call or email. But you have to promise me one thing: Please call me again and tell me how things went for you. You are really something very, very special, you have something very rare, but also difficult to treat. It's almost intangible, which is why you have to test what helps. But I see zanubrutinib as very effective! If the health insurance company refuses, I will contact them personally and formulate something so that you can be helped. It's the only option. Period!!!!!Please keep warm! Save your energy for the really important things in life. see you soon."
Such a good phone call. So important to me. So special!